The Campdraft for a Cure event emerged when the Webster Family’s daughter Gracie was officially diagnosed with SynGAP1. Four friends decided to create an organisation (Somerset Campdraft Association) to hold a fundraising event in hopes of bringing much needed awareness & raising funds to support the quest for treatments to the rare disorder.

Campdraft for a Cure reached thousands of social media followers in the lead up to the event and created prominent awareness for SynGAP1 & epilepsy related disorders alike. The event was held in small town community of Wandoan, Queensland and attracted hundreds of supporters from all across Australia.

Campdraft for a Cure is associated with Syngap Research Fund Australia who advocate for, connect and support SynGAP families and enable SynGAP research. They have been advocating for SynGAP and campaigning for funds in Australia since 2016 and strongly believe precision medicine will deliver viable therapeutic approaches for SynGAP. Visit: www.syngapaustralia.org

Syngapl is a rare genetic disorder caused by a mutation on the Syngapl gene. It leads to several neurological issues in Syngap patients. There are currently 1400 diagnosed Syngap patients in the world but there are thousands more undiagnosed. There is currently no cure or specific treatment for Syngap1, however intense therapy can help Syngap patients improve their skills and reach milestones.

Paradise Lagoons Campdraft wants to help raise funds for this cause, so in 2025 PLC & CFC have joined together to host ‘Campdraft for Cure Cocktail Party‘.

Photo Source: https://www.facebook.com/campdraftforacure